Tag: Global Genes

Patient and Stakeholder Engagement

Patient Engagement Exec. Director to Speak on Rare Patient Advocacy

DURHAM, N.C., September 13, 2017 — Premier Research’s head of patient engagement will address patients’ emerging role in the development of novel drugs at the Global Genes RARE Patient Advocacy Summit in Irvine, California. Juliet Moritz, the CRO’s Executive Director for Patient Engagement and Strategic Development, will join Alvin Shih, CEO of the biotech company...

Patient and Stakeholder Engagement

Register Now: Patient Advocacy Groups and Their Role in Orphan Drug Development

There are more than 7,000 known rare diseases, and these conditions afflict an estimated 30 million Americans (almost one in 10). Worldwide, some 350 million are living with a rare disease. But for 95 percent of these conditions, there are no FDA-approved treatments — not one. Conventional wisdom holds that innovation follows need: that if...

Patient and Stakeholder Engagement

Gaining Strength: Webinar to Explore Advocates’ Role in Drug Development

DURHAM, N.C., August 10, 2016 — Patient advocacy groups play an important and growing role in developing drugs to treat cancer and rare diseases, contributing to study design, recruiting patients, and even directly funding clinical trials. At a September webinar, Premier Research will team with rare disease advocacy organization Global Genes to explore this important...

Premier Research Employees to Support Rare Disease Awareness

7,000 rare diseases, many untreatable. 50% of patients are children. 35% of deaths in the first year of life are due to rare diseases. To everyone at Premier Research, that’s a call to action. So Premier Research employees worldwide will join together on Friday, February 27, to raise awareness of Rare Disease Day 2015.