The Powerful and Evolving Role of Patient Advocacy Groups in Orphan Drug Development

This webinar reviews the history of patient advocacy groups in advancing clinical research and examines the evolution of their role in light of recent and pending legislative and regulatory changes in the United States and European Union. Included is a discussion of how patient advocacy groups and industry can join to respond most effectively to these anticipated changes.

Presenters are Susan Stein, MPH, a member of the Board of Directors of worldwide patient advocate umbrella organization Global Genes, and Juliet Moritz, MPH, Executive Director of Strategic Drug Development for Rare Diseases at Premier Research.

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Title:
The Powerful and Evolving Role of Patient Advocacy Groups in Clinical Research

Date: Wednesday, September 14, 2016

Time: 11am EDT (NA) / 4pm BST (UK) / 5pm CEST (EU-Central)

Speakers:

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