Patient and Stakeholder Engagement
Patients and their advocates are at the heart of everything we do, so we created a support network to bring everyone together.
Reaching hard-to-find patients is one of the biggest obstacles
Keeping patients enrolled and committed to your study is key
We understand that patients and their advocates are at the heart of everything we do, so we created a support network, Patient and Stakeholder Engagement (PASE), that brings all relevant stakeholders to bear in achieving patient-centered drug and device development for the biotech and specialty pharma community.
We work with sponsors to understand the disease’s burden and the patients’ treatment goals, gaining insight that is vital to creating effective recruitment and retention strategies. Patients and families factor heavily in trial design, and we build relationships with relevant patient communities and key opinion leaders.
Through patient and family outreach, we define protocols that encourage enrollment, incorporating measures to maximize retention from day one. These are not generic approaches, but study- and site-specific solutions that keep patients committed to the study.
PREMIER INSIGHT 260
Recruiting hard-to-find patients
First challenge: Overcome an early patient screening failure rate of 70 percent. Learn how our relationships with key opinion leaders in Russia helped turn the tide.
The evolving role of patient advocacy
The increasing extent and quality of collaboration between sponsors and patient advocacy groups is helping advance the treatment of the more than 7,000 identified rare diseases.