You may be interested in these additional resources:
Premier Research Champions Patient Advocacy Community
As part of a commitment to improving patients’ well being, we’ve created a scholarship for rare disease patient advocates in partnership with Professional Patient Advocates in Life Sciences (PPALS) —and we’ve launched a new Patient and Stakeholder Engagement (PASE) capability. Learn more.
Premier Voices #8: Engaging Patients In Clinical Trials
Alan Thomas, founder of an organization focused on a rare neurological disorder, and Premier’s Juliet Moritz share observations on how patient engagement is changing the face of clinical research. Listen now.
KOLs to Patient Advocates: Using Every Tool to Fight Disease
Finding patients for trials in very rare conditions is difficult under any circumstances, and in this case the odds were really stacked high against success. Get the details.