You may be interested in these additional resources:
Podcast: Engaging Patients in Clinical Trials w/ Alan Thomas & Juliet Moritz
As Premier Research’s Vice President, Patient and Stakeholder Engagement (PASE), Juliet Moritz has viewed this evolution up close — and so has Alan Thomas, founder of an organization that advocates on behalf of people afflicted with ataxia, a rare neurological disorder. Listen to the podcast now.
Event: Premier Research To Sponsor The Global Orphan Drug Conference and Expo in April 2019
Premier Research is proud to return as a sponsor of the Global Orphan Drug Conference and Expo (WODC) for our ninth year. WODC focuses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. Read more here.
Case Study: Using Every Tool To Fight A Rare Disease
Our recruiting target was 18 patients, but even that was a challenge for a condition that afflicts just one in 31,000 people. It required making full use of what few resources were available, including key opinion leaders (KOLs) at the two trial sites and a national patient advocacy group. Read the case study.